Patient Sites & Blogs
Similar to online health forums, patient websites and blogs don’t always contain the most reliable health information. However, they do offer the patient perspective which is vital for anyone who is trying to navigate the health care system. In addition, when patients have a real interest and passion for natural healing, the content can be rich with healthy advice.
GFE – Gluten Free Easily
http://glutenfreeeasily.com – loads of gluten free recipes and information from Shirley Braden.
But You Don’t Look Sick
www.butyoudontlooksick.com – site from founder, Christine Miserandino, a Lupus patient dedicated to educating people on invisible illness.
Other Great Patient Sites
A Life Hidden
alifehidden.com– beautiful blogs and tributes to raise awareness for ME (myalgic encephalomyelitis).
After Stroke Party
www.afterstrokeparty.com – a site by a young woman who recovered from a stroke.
www.autoimmunegal.blogspot.com – just what it says! A woman with autoimmune disease shares her struggles.
Larry Berkelhammer, Ph.D
www.larryberkelhammer.com – a psychotherapist with multiple autoimmune diseases who discusses his journey with mindbody medicine.
The Bravest Little Toaster
bravestlittletoaster.wordpress.com – wins the award for cutest title ever! This site from Emily Lemiska explores the challenges of living life in pain due Klippel-Feil Syndrome.
A Chronic Dose
www.achronicdose.blogspot.com– a blog from patient (PCD, bronchiectasis, celiac disease) and author, Laurie Edwards.
http://dearthyroid.org – a site where people with thyroid disease can write letters to that pesky organ.
The Elaine Moore Graves’ Disease and Autoimmune Disease Education
www.elaine-moore.com – a site from patient and author, Elaine Moore.
Getting Closer to Myself
http://gettingclosertomyself.blogspot.com – a personal blog from a woman with Lupus.
www.ibstales.com – a site on irritable bowel syndrome (IBS) from patient Sophie Lee.
http://reasonablywell-julia.blogspot.com – a retired nurse living with Sjogren’s Syndrome.
UII – Understanding Invisible Illnesses
http://myuiiblog.blogspot.com – autoimmune disease is often invisible, this blogger raises awareness of this fact.
www.wegohealth.com – a site for health activists.
[Last Updated: 10/31/20]