Health agencies provide a wealth of educational opportunities, patient support, fundraising initiatives, and research. However, it is important to remember that they often receive money from pharmaceutical companies and the conventional medical industry so there is the potential for biased information.
The sites following are organized alphabetically by condition. Given the length of the list, not all sites include descriptions (click the purple links below to jump to those resources):Anxiety / Mental Health – Autoimmune Disease – Arthritis – Asthma, Respiratory Diseases & Allergies – Cancer – Diabetes / Endocrinology – Digestive Disorders – Heart Disease – Women’s Health – Miscellaneous
Anxiety & Mental Health
American Psychiatric Association of America
American Psychological Association
Anxiety and Depression Association of America
The International Society of Mental Health Online
Gateway to Post Traumatic Stress Disorder(PTSD) Information
General Information – Autoimmune Disease Fact Sheet
Medline Overview on Autoimmune Disease – http://www.nlm.nih.gov/medlineplus/autoimmunediseases.html
American Autoimmune Related Diseases Association – www.aarda.org
Specific Autoimmune Conditions
American Vitiligo Research Foundation
Graves’ Disease & Thyroid Foundation
International Pemphigus & Pemphigoid Foundation
Lupus Alliance of America
Lupus Foundation of America (LFA)
Myasthenia Gravis Foundation of America
The Myositis Association
National Adrenal Diseases Foundation
National Alopecia Areata Foundation
National Multiple Sclerosis Society
National Psoriasis Foundation
Platelet Disorder Support Association
Sjogren’s Syndrome Foundation
Transverse Myelitis Association
Vitiligo Support International
American College of Rheumatology
The Johns Hopkins Arthritis Center
Asthma, Respiratory Diseases & Allergies
American Lung Association
Coalition for Pulmonary Fibrosis
North Carolina Department of Health and Human Services, Asthma Program
Annie Appleseed Project
Anticancer Lifestyle Program
Best Answer for Cancer Foundation
www.cam-cancer.org – Complementary and alternative medicine assessment in the cancer field
Cancer Treatment Centers of America
Embodiworks Integrative Cancer Care
Fibrolamellar Cancer Foundation
Insulin Potentiation Therapy for Cancer
The MD Anderson Cancer Center Complementary/Integrative Medicine Education Resources
Memorial Sloan-Kettering Cancer Center, Integrative Medicine Service
University of Florida, Shands Cancer Center
The University of Texas, MD Anderson Cancer Center
Diabetes / Endocrinology
American Association of Diabetes Educators
American Diabetes Association
Center for Traditional Medicine
Diabetes Actions, Research and Education Foundation
http://www.empoweryourhealth.org – Site focuses on diseases of the endocrine system including thyroid conditions, diabetes, adrenal disorders, and osteoporosis.
American College of Gastroenterology
American Gastroenterological Association
Celiac Disease Foundation*
Crohn’s and Colitis Foundation of America
Crohn’s and Me
www.crohnsandme.com – * this is not an association site, and appears to have pharmaceutical ties. Still if offers a wealth of information on nutrition and living well with Crohn’s disease.
Gluten Intolerance Group*
http://www.gluten.net – offering support, advocacy and education on and for gluten intolerances, celiac disease, dermatitis herpetiformis, and other gluten sensitivities.
National Foundation for Celiac Awareness*
http://www.celiaccentral.org – provides gluten free cooking videos, recipes, and education on the gluten free lifestyle.
*You can find additional Gluten Free Websites on my other blog (www.webhealthwriter.com/blog/)
American Heart Association
Women’s Heart Foundation – The National Coalition for Women with Heart Disease
www.healthywomen.org – a nonprofit organization that offers a wealth of information on women’s health topics.
Society for Women’s Health Research
www.womenshealthresearch.org – The SWHR has an excellent e-newsletter that provides the latest health news on a variety of women’s health issues.
American Chronic Pain Association
The Foundation for Sarcoidosis Research
www.stopsarcoidosis.org – a site for sarcoidosis patients that includes a patient forum.
Health on the Net Foundation
http://www.hon.ch/pat.html – a nonprofit organization that sets standards for quality information online. The content of this site (www.HappyHealthHer.com) strives to meet the HON Code of standards.
National Health Council
www.nationalhealthcouncil.org – an advocacy group for those with chronic illness. For information on specific illness check out their Resource Directory.
National Sleep Foundation
National Kidney Foundation
National Organization for Rare Disorders (NORD)
http://rarediseases.org – a nonprofit group dedicated to helping those with rare conditions.
National Osteoporosis Foundation
Patient Advocate Foundation (PAF)
http://www.patientadvocate.org a nonprofit organization that provides “professional case management services to Americans with chronic, life threatening and debilitating illnesses.”
[Last Updated: 6/6/22]