Health agencies provide a wealth of educational opportunities, patient support, fundraising initiatives, and research. However, it is important to remember that they often receive money from pharmaceutical companies and the conventional medical industry so there is the potential for biased information.
The sites following are organized alphabetically by condition. Given the length of the list, not all sites include descriptions (click the purple links below to jump to those resources):Anxiety / Mental Health – Autoimmune Disease – Arthritis – Asthma, Respiratory Diseases & Allergies – Cancer – Diabetes / Endocrinology – Digestive Disorders – Heart Disease – Women’s Health – Miscellaneous
Anxiety & Mental Health
American Psychiatric Association of America
www.psych.orgAmerican Psychological Association
www.apa.orgAnxiety and Depression Association of America
www.adaa.orgThe International Society of Mental Health Online
www.ismho.orgGateway to Post Traumatic Stress Disorder(PTSD) Information
www.ptsdinfo.org
Autoimmune Disease
General Information – Autoimmune Disease Fact Sheet
Medline Overview on Autoimmune Disease – http://www.nlm.nih.gov/medlineplus/autoimmunediseases.html
American Autoimmune Related Diseases Association – www.aarda.org
Specific Autoimmune Conditions
American Vitiligo Research Foundation
www.avrf.orgGraves’ Disease & Thyroid Foundation
www.gdatf.orgInternational Pemphigus & Pemphigoid Foundation
www.pemphigus.orgLupus Alliance of America
www.lupusalliance.orgLupus Foundation of America (LFA)
www.lupus.orgMyasthenia Gravis Foundation of America
www.myasthenia.orgThe Myositis Association
www.myositis.orgNational Adrenal Diseases Foundation
www.nadf.usNational Alopecia Areata Foundation
www.naaf.orgNational Multiple Sclerosis Society
www.nationalmssociety.orgNational Psoriasis Foundation
www.psoriasis.orgPlatelet Disorder Support Association
www.pdsa.orgScleroderma Foundation
www.scleroderma.orgSjogren’s Syndrome Foundation
www.sjogrens.orgTransverse Myelitis Association
www.myelitis.orgVasculitis Foundation
http://vasculitisfoundation.orgVitiligo Support International
www.vitiligosupport.org
Arthritis
American College of Rheumatology
www.rheumatology.orgArthritis Foundation
www.arthritis.orgThe Johns Hopkins Arthritis Center
www.hopkins-arthritis.org
Asthma, Respiratory Diseases & Allergies
American Lung Association
www.lungusa.orgCoalition for Pulmonary Fibrosis
www.coalitionforpf.orgNorth Carolina Department of Health and Human Services, Asthma Program
www.asthma.ncdhhs.gov
Cancer
Annie Appleseed Project
www.annieappleseedproject.orgAnticancer Lifestyle Program
https://anticancerlifestyle.org/Best Answer for Cancer Foundation
www.bestanswerforcancer.orgCAM Cancer
www.cam-cancer.org – Complementary and alternative medicine assessment in the cancer fieldCancer Treatment Centers of America
www.cancercenter.comCommonweal
www.commonweal.orgEmbodiworks Integrative Cancer Care
www.embodiworks.orgFibrolamellar Cancer Foundation
www.fibrofoundation.orgInsulin Potentiation Therapy for Cancer
www.iptforcancer.comThe MD Anderson Cancer Center Complementary/Integrative Medicine Education Resources
http://www.mdanderson.org/education-and-research/resources-for-professionals/clinical-tools-and-resources/cimer/index.htmlMemorial Sloan-Kettering Cancer Center, Integrative Medicine Service
www.mskcc.org/cancer-care/integrative-medicineUniversity of Florida, Shands Cancer Center
www.ufscc.ufl.eduThe University of Texas, MD Anderson Cancer Center
www.mdanderson.org
Diabetes / Endocrinology
American Association of Diabetes Educators
www.diabeteseducator.orgAmerican Diabetes Association
www.diabetes.orgCenter for Traditional Medicine
www.centerfortraditionalmedicine.orgDiabetes Actions, Research and Education Foundation
www.diabetesaction.orgEmPower
http://www.empoweryourhealth.org – Site focuses on diseases of the endocrine system including thyroid conditions, diabetes, adrenal disorders, and osteoporosis.
Digestive Disorders
American College of Gastroenterology
www.acg.gi.orgAmerican Gastroenterological Association
www.gastro.orgCeliac Disease Foundation*
www.celiac.orgCrohn’s and Colitis Foundation of America
www.ccfa.orgCrohn’s and Me
www.crohnsandme.com – * this is not an association site, and appears to have pharmaceutical ties. Still if offers a wealth of information on nutrition and living well with Crohn’s disease.Gluten Intolerance Group*
http://www.gluten.net – offering support, advocacy and education on and for gluten intolerances, celiac disease, dermatitis herpetiformis, and other gluten sensitivities.National Foundation for Celiac Awareness*
http://www.celiaccentral.org – provides gluten free cooking videos, recipes, and education on the gluten free lifestyle.*You can find additional Gluten Free Websites on my other blog (www.webhealthwriter.com/blog/)
Heart Disease
American Heart Association
www.americanheart.orgCardiology Today
www.cardiologytoday.comWomen’s Heart Foundation – The National Coalition for Women with Heart Disease
www.womenheart.org
Women’s Health
Endometriosis Association
www.endometriosisassn.orgHealthy Women
www.healthywomen.org – a nonprofit organization that offers a wealth of information on women’s health topics.Society for Women’s Health Research
www.womenshealthresearch.org – The SWHR has an excellent e-newsletter that provides the latest health news on a variety of women’s health issues.
Miscellaneous
American Chronic Pain Association
www.theacpa.orgThe Foundation for Sarcoidosis Research
www.stopsarcoidosis.org – a site for sarcoidosis patients that includes a patient forum.Health on the Net Foundation
http://www.hon.ch/pat.html – a nonprofit organization that sets standards for quality information online. The content of this site (www.HappyHealthHer.com) strives to meet the HON Code of standards.National Health Council
www.nationalhealthcouncil.org – an advocacy group for those with chronic illness. For information on specific illness check out their Resource Directory.National Sleep Foundation
http://www.sleepfoundation.orgNational Kidney Foundation
www.kidney.orgNational Organization for Rare Disorders (NORD)
http://rarediseases.org – a nonprofit group dedicated to helping those with rare conditions.National Osteoporosis Foundation
http://www.nof.orgPatient Advocate Foundation (PAF)
http://www.patientadvocate.org a nonprofit organization that provides “professional case management services to Americans with chronic, life threatening and debilitating illnesses.”
[Last Updated: 6/6/22]